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Carrie Meghie on her commitment to help families with babies in the NICU

Carrie Meghie with her sJackson

Carrie Meghie with her son Jackson

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Updated: March 27, 2014 1:58PM

On 11/11/11 at 11:11 p.m., my son Jackson was born nine weeks premature. Jackson was truly as special as his birthday. He spent all but 48 hours of his short life in the NICU, but those 10 months were the happiest of my life.

Every night with Jackson felt like Christmas Eve. I will cherish the memory of running into his room and seeing his beautiful brown eyes look up at me and give me a huge smile. He took full advantage of his gorgeous eyelashes by flirting with all of the nurses. I am proud of his numerous girlfriends, who we know, without a doubt, truly loved him.

Jackson brought us more joy in his short 10 months than we could have hoped for in a lifetime. I am sad that so few people got to know him, as he was very social and loved people. He would sit up in his crib and watch the other babies and the nurses. He was a music fan, and loved when the nurses danced for him. He was so cute that we actually discussed his adorableness during rounds each day. He was destined to be a soccer player, dancer or even a swimmer, as his feet were always kicking.

The few lucky ones who got to meet Jackson were amazed by his spirit. He was, by far, the happiest baby I have ever met. We always thought Jackson would come home and live a long life with us; we never considered the possibility that he would not make it home until right at the very end. Jackson passed away in my arms while holding his father’s hand on Sept. 7, 2012.

My husband and I were blessed to have the resources and support to spend each and every day with Jackson. We were able to find so much joy in the NICU and create an environment where the hospital became an extended family to us and Jackson. We wholeheartedly believe that the time we spent with Jackson contributed to his happiness and well-being during his short life.

After Jackson’s passing, my husband and I started the Jackson Chance Foundation with the goal of helping other families and babies find the same happiness and joy that we did. The NICU was our family’s home away from home, and we know firsthand the challenges parents face while having a child in the hospital. We witnessed families struggling to pay for parking; parents desperate to see their children but held back with work commitments; mothers and fathers forced to leave their babies alone in the NICU despite their best efforts to visit.

To our surprise, parking and transportation was our largest out-of-pocket expense. Can you imagine the cost of parking or transportation being the barrier preventing you from seeing your critically ill baby?

The Jackson Chance Foundation works to ensure that the financial burden of parking and transportation does not stand in the way of any parent seeing their child. In partnership with the Ann & Robert H. Lurie Children’s Hospital of Chicago, the Jackson Chance Foundation created the NICU Transportation Program this past September. We are very proud to share that no family with a baby in the NICU at Lurie Children’s pays for parking or transportation any longer.

I never imagined that I would be reminded so soon why the need for assistance in the NICU is so great. On Nov. 27, 2013, just like his big brother, my second son Maxson J. couldn’t wait to meet us, and was born just under six weeks premature. I am happy to say that his NICU stay was brief and Max is home and healthy. I have no doubt that my angel sent us back to his “home” as a reminder to keep doing what we are doing.

We hope that Jackson’s memory will continue to live on by touching families with babies in the NICU. Our goal at the Jackson Chance Foundation is to help others enjoy the moment, just like Jackson did.

For more information on the Jackson Chance Foundation, visit

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